希少神経難病医療の未来を加速させたい!

希少神経難病医療の未来を加速させたい!
突然夫が神経難病になり、懸命に生きようとする夫のために何ができるのか模索し、このプロジェクトが心に降りてきました。この研究の支援が広がることで神経難病が難病でなくなる未来をが近づいてくると思います。真剣に研究し、実用化を目指しておられる方々への支援をどうぞよろしくお願いします。

t is small. I want to take even one step forward to advance medical research for intractable diseases.

This project is also a project for me to live a positive life. I may be self-centered and self-satisfied, but I decided to do this because I thought it would bring hope to the families of patients with intractable diseases who are suffering from the same pain of not doing anything. Also, when my husband was diagnosed with an incurable disease, I realized how many people have supported us. Why don’t we start a movement together to express our gratitude?

I believe that we can change the world and make a difference by doing what we patients and families want from society, starting with what we ourselves can do. I really appreciate your support.


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希少神経難病医療の未来を加速させたい!